Friday, March 22, 2013
I heard it said that if you treat everyone as though they're hurting, then you will be right most of the time. It's true - you never know what's going on in the lives and minds of the people you encounter. Maybe a lot of people who see my family in public think that Josiah is undisciplined and rude, and that makes me wonder about the wrong assumptions I've made about other people and their kids. I can certainly afford to be more generous with my kindness.
Thursday, March 21, 2013
Josiah was almost eighteen months old. Jeremy and I had been thinking for a while that something was a little off, but we soothed our concerns with the idea that perhaps our sweet boy was just quirky. My Mama and Daddy had been suspicious too, but they waited a little while to say anything. My Grandmother was close to passing, and Mama knew it just wasn't the time to tell me that she was wondering about the possibility of Autism.
I remember sitting in the living room with Jeremy one evening. I'm not sure which of us pulled the website up with a list of warning signs for Autism, but there it was. We read the list, and we sat in disbelief. It was like reading Josiah's biography. It was undeniable. This was our boy. I cried in bed that night as we lay looking at each other with Josiah between us. We fell asleep wondering if this could be and what were we going to do.
I awoke the next morning on a mission. Mama suggested a few people to call, and those people suggested a few people to call, and then I talked to our pediatrician on the phone. Dr. Mertz has become a dear friend over the years. He has walked through many difficult trials with us, and I knew he trusted my mother's intuition. Dr. Mertz asked me what things were concerning me, and he agreed to make a referral to the Children's Developmental Services Agency for testing. Dr. Mertz and a few other precious friends gave me very clear direction those first few days. Our initial meetings with the CDSA confirmed our fears, and, by the age of two, Josiah received his official diagnosis of Autism.
And so began the flurry of therapies. Speech, Occupational, and Educational. I researched and I made appointments with a neurologist and a developmental pediatrician. Josiah underwent an MRI with contrast and genetic testing. It was at our neurologists office that I first heard the term ABA (Applied Behavior Analysis) therapy. The doctor assured us that the therapy is exceptionally costly, and he said that there were several other alternatives that would provide Josiah with every opportunity for development. He was right about ABA being expensive. Jeremy priced it, and, for one month of therapy, it would have taken our entire monthly income. It just wasn't a possibility. So I set out to learn about every therapy and early intervention we could get for Josiah. And we did them all. We drove to and sat through hours of therapy each week. I am thankful for those times because I now have the confidence that I did everything I could do. The therapies and therapists were good and so very supportive, but none of us had a clue just how severe Josiah's Autism truly was.
After our first few meetings, I was left thrilled about being hopeful, but heavyhearted that we were just getting access to ABA now. The therapy the consultant is using is actually a version of ABA called the Verbal Behavior Approach. The book we are reading makes so much sense. I have been left wondering why I have never been told about this book before.
I know this is a lot of rambling to get to the point of this post, but here it is......To every Daddy and Mama out there wondering what to do, to every parent out there wishing they would have, and to every one asking what if, all you can do is your best today. God is in control. He gives us knowledge when He wants us to know. Our job is to do the best we can for our child with what God has given us. And so I am trying very hard to take my own advice right now. Stop what if-ing, Christy. Do all you can for this sweet boy today. Tomorrow will come, and God will give you the knowledge and strength for tomorrow.
here is the book you need. I am recommending it not because we have seen great gains yet, but because it is important to hope. Love and Blessings!
Wednesday, March 20, 2013
Don't miss the Summary and Applications at the end. This is right where we live.
When Jesus Meets Disability: How a Christian Hedonist Handles Deep Disappointment
The Works of God Conference
God's Good Design in Disability
November 8, 2012 | by John Piper | Topic: Christian Hedonism | Conference: 2012 Works of God Conference